The cousin of one of our team members is battling a devastating and degenerative combination of medical conditions, and we need your help to get her the treatment that has renewed her hope and could save her life!
19 year old Roisin was born with Cystic Fibrosis and was recently diagnosed with Pulmonary Hypertension. The combination of these two conditions has caused a very sudden, rapid decline in her health. She is now dependent on a wheelchair and oxygen tank, which she cannot physically carry herself, and has to spend most of her time in a hospital over 50 miles from her home, friends, and family. With the additional diagnosis of PH, Roisin’s quality of life and prognosis have significantly deteriorated.
When Roisin stopped responding to treatment, it was believed that the only option for her was a double lung transplant. Sadly, 1 in 3 CF patients dying whilst on the transplant waiting list. With the complications from her PH, Roisin’s fate was looking grim.
However, there is a new, alternative treatment to lung transplants which helps repair and heal the damaged lung tissues as well as provide healthy, working cells which will slow down the progress of the CF. This treatment involves harvesting adult stem cells from Roisin’s bone marrow and that of a genetic relative who does not suffer from CF, mixing the two, educating and activating them to become lung cells, then putting these new stem cells back into Roisin via an IV line.
This treatment has lifted Roisin’s spirits and given her the strength to keep fighting what she thought before was an impossible battle. It also means any donated lungs can go to someone who doesn’t have any other options, as this treatment is not a viable option for everyone.
Unfortunately, this treatment is expensive. Roisin needs to raise £55,000 (about $89,000) as quickly as possible to have a chance at saving her life. We’re racing against the clock as Roisin’s health worsens, and any effort is greatly appreciated!
Thank you from all of us on Team Purgatorgy!
I am haunted by Becky’s tags on that Cas post where he’s gagged.
‘he’s done that before’
f u c k.
This is a tumblr hug :) Pass it on to at least 10 of your favourite followers and remember don’t break the chain (✿) - ((PS: I don’t care if you "break the chain". I don’t usually send these things on, myself. But I just wanted you to know I think you’re pretty rad and I love you.))
YOU HAVE NO IDEA HOW BADLY I NEEDED THIS TODAY - thank you, you absolute angel - you gave me my first smile in about 12 hours :). And the sentiment is mutual - right back at you :).
I wasn’t going to pass this on, but then I figured someone else may appreciate it as much as I did, so I may have to do so after all!
SORRY I’VE BEEN AWOL, TUMBLR!
I had to make two cakes, then I hiked for E4K, then I spent a day (and basically night) in London and NOW I have to go to work - bah - BUT, I’ll be about tonight to pay attention to you and respond to lovely people who have sent me messages - SORRY!
My E4K journey! Jimmy and I walked just over 15 miles, and ended our hike at the beautiful and appropriately-named Winchester Cathedral :). Clad in my snail costume, I attracted a few funny looks, but also got the opportunity to talk about Random Acts when people asked what we were doing :D.
It was hard, but we had a great time, and had lots of support along the way from family and friends - thanks all! Still time to donate here if you fancy - it’s for a truly brilliant cause :).
How are you enduring 4 kindness today? Our stalwart E4K-ers have shared so many photos, videos, and stories from around the world since #E4K started that Sergei has a hard act to follow for his adventure later today.
And if you were wondering how our official #E4K trainer, Sergei Sergeiovich is planning to #E4K this weekend, drop by his Crowdrise page. He’ll be teaming up with Osric Chau and our dauntless Director Cinde Monsam. The trio will be battling Mother Nature on three separate (but equally awesome) kayak tours today.
therandomactorg replied to your photo “Snail trekking for EFFORKÉ - this seemed apt… Make sure you donate!…”
Snail trekking?! We love it! Best of luck and have a great day. We appreciate all you do to make the world a little kinder. :)
Haha! Thank you! I’m the least fit person in the world so it seemed appropriate… We managed 8 hours and 15 miles - already planning to smash that next year - but for now, a bath and a cup of tea are in order!
Crafting cats, slow trekking snails, and even a mini #E4K9 sculpture! Your creativity has blown us away! Whether you’re drawing, running, biking, sculpting or practicing some wicked stitchery, we salute your kindness and your amazing skills.
Our official #E4K trainer, Sergei Sergeiovich will have to be at the top of his game today to keep up with you! If you’d like to support his kayak trek, drop by his Crowdrise page. He’ll be teaming up with Osric Chau and our dauntless Director Cinde Monsam. The trio will be battling Mother Nature on three separate (but equally awesome) kayak tours tomorrow.